Health Care

Charlie Gard will end his days in a palliative care unit

Charlie Gard will end his days in a palliative care unit”

At yet another contentious High Court hearing yesterday, his mother Connie Yates fled, screaming 'What if this was your child?' after being denied her final wish to take her son home to die.

Armstrong said the couple believes they can put a privately-funded nursing care plan in place, which would include some nurses from London's Great Ormond Street Hospital (GOSH), where Charlie is now being cared for.

Mr Justice Francis began analysing the dispute at a hearing in the Family Division of the High Court on Tuesday.

His parents would like up to a week to say goodbye to their little boy but his medics say death should come within a few hours.

Previously, the hospital had promised that they "won't stand in the way", according to Grant Armstrong, the couple's lawyer, but now they were setting up "obstacles". "May I pay tribute to those nurses for volunteering", he said. Shortly after birth, he was struck with an extremely rare disease called mitochondrial DNA depletion syndrome (MDDS).

Mr Justice Francis ruled that unless the parents and GOSH came to an agreement by noon today, Charlie will be taken to a hospice and life support treatment will end soon after.

Mr Armstrong said that Miss Yates was determined to find doctors to help, saying: 'She is not a quitter under any circumstances at all'.

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It has instead offered a hospice space for Charlie. Yates requested that Gard be released from the hospital into hospice care for a week before being taken off life support.

They also failed to persuade European Court of Human Rights judges to intervene.

The parents, who wanted to take the 11-month-old to the US for experimental treatment, gave up their struggle earlier this week after recent scans showed irreversible damage to his muscles.

Michio Hirano, MD, chief of the division of neuromuscular disorders and director of the H. Houston Merritt Clinical Research Center at New York City-based Columbia University Medical Center, traveled to London last week to examine Charlie and determine if he may be a candidate for an experimental treatment. However, the hospital recently agreed to consider new evidence involving Charlie's condition before taking him off the ventilator.

The parents gave up the legal battle on Monday, saying the latest scans showed Charlie's condition had deteriorated to the point that no recovery was possible.

The hospital disagrees. It says Charlie had suffered irreversible brain damage by January as a result of a series of seizures, and his responsiveness has not changed since then.



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